Launching Lifelong Health by Improving Health Care for Children Youth and Families, Consensus Study, National Academies of Sciences, Committee on Improving the Health and Wellbeing of Children and Youth Through Health Care System Transformation, 2024
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Accelerating Child Health Care Transformation: Key Opportunities for Improving Pediatric Care, Report, Center for Health Care Strategies, August 2021
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Advancing Compassionate, Person- and Family-Centered Care Through Interprofessional Education for Collaborative Practice, Framework Development
Group, 2014-2015, The Arnold P. Gold Foundation, Schwartz Center for Compassionate Care, The University of Chicago Medicine Bucksbaum Institute, Josiah Macy Foundation
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Building Trust dialogue via Slack Channel, Hosted by Public Agenda, American Board of Internal Medicine Foundation, July 2020- Present
“Consumer Approach Does Not Work In Healthcare, Some Say,” Medscape Medical News, Marcia Frellick, March 11, 2019
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Measuring Experience in the World of COVID, White Paper, The Beryl Institute, September 2020

Moving Patient Centered Care Forward- How Do We Get There, Robert Wood Johnson Foundation and Academy Health, October 2018
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Partnering to Improve Quality and Safety- A Framework For Working With Patient and Family Advisors, American Hospital Association and Health Research Educational Trust, March 2015
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Patient, Family, and Clinician Partner Training Guide, Patient Centered Primary Care Collaborative (PCPCC), PCPCC Support and Alignment Network for Patient, Caregiver, and Community Engagement, November 2016
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Patient and Family Leadership Compendium for Health Care, Editorial Counsel, National Academy of Medicine, July 2015
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Population Health for Children with Medical Complexity Project, Children’s Discovery and Innovation Institute, Mattel Children’s Hospital, UCLA, August 2016
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Person Centered Engagement at the Organizational Level, Change Package, Healthcare Transformation Task Force Advisory Committee, Center for Consumer Engagement in Health Innovation, Community Catalyst, Fall 2019, Policy Statement on Patient Family Centered Care, American Academy of Pediatrics, 2017-2020, Publication Date Unknown
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Principles for Making Healthcare Performance Measurement More Patient Centered, American Institutes for Research, April 2017
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Strengthening The Role of Patient and Family Leaders in Healthcare Improvement- Strategic Opportunities for the Institute of Medicine, November 2014
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The Case For Patient Centered Measurement, Brief, American Institutes for Research, May 2020
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The Patient Engagement in Quality Measurement Rubric- A Guide to Patient Partnership in the Quality Measure Lifecycle, National Roundtable, Pharmacy Quality
Alliance, September 2019
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Transforming Measurement For Better Care- Lessons Learned From Patient Centered Measurement Pilots, Brief, American Institutes for Research, May 2020
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We Are The Patient Experience, Patient Experience Annual Conference, Opening Video, The Beryl Institute, Chicago, IL, April 2018
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